We will provide support to families affected by SATB2 syndrome worldwide and address issues specific to European families.

How we will fulfil our mission

  • We gather a network of European families affected by SATB2 syndrome and capture their experiences and needs as input for our work.
  • We provide information and resources for caregivers that help them manage SATB2 syndrome-associated symptoms and empower them to make informed decisions.
  • We strive to support European families with important information in their native language.
  • We build a strong and knowledgeable European SATB2 syndrome community that actively takes part in our initiatives.

How can I help?

We welcome everybody! We need help with very varying things. Both research and medicine related things, but even more with tasks such as IT, Design, Communication, Translations, Finance, and other related things.

Email us at for more information!