What is SAS?
SATB2-Associated Syndrome (SAS) is a rare neurodevelopmental disorder, caused by alterations to the SATB2 gene. People with SAS are often nonverbal, have dental issues and a higher risk of fractures. Many also face seizures and sleep disturbances. Despite the challenges, persons with SAS are known for their friendly personalities and unique smiles.
Meet our heroes
Who we are
SATB2 Europe is led by parents and caregivers whose lives have been shaped by SAS. We know the challenges, the uncertainty, and the strength it takes, because this is our daily reality. Our children are at the heart of everything we do. United by love and determination, we come together to create a different future - one with better care, meaningful treatments, and greater independence for all living with SAS.
What we do
We turn lived experience to action, connection and lasting change for affected families across Europe and beyond.
Learn more about the three initiatives that shape everything we do:
Help us improve SAS lives!
Every person with SAS deserves the chance to enjoy better health, receive the right medical assistance and live a more independent life. That's why we promote research and build the foundation of accessible, clinical care.
Your support helps us improve the lives of people with SAS and give their families urgently needed hope. Every donation brings us closer to effective therapies, appropriate care and treatments that ultimately can reverse SAS symptoms.
