newsletter

Here, we've collected news, articles, podcast and links to SAS and SATB2 in the media.
Thanks to everyone who raise awareness of SATB2-associated syndrome!

Let us know when SAS/SATB2 appears in the media by sending an an email to This email address is being protected from spambots. You need JavaScript enabled to view it..


The protein that makes children smarter 
Digital news article at German Welt.de on SATB2 research. Archived article in German here.

 


The patient journey: SATB2-associated syndrome
In this podcast, FIECON Patient Perspectives interviews Erika on her experience as both a SAS parent and a patient advocacy leader.

 Fiecon Erika2

 


Leif's special smile
Newspaper article in German Südkurier on Leif and his family, living with SAS

   

 


Axel, 6, has this rare diagnosis - only 10 other cases in Sweden
Swedish interview on TV4 Nyhetsmorgon with Emmelie, mother to Axel with SAS


Erika Stariha - SATB2-associated syndrome
Podcast On One Condition interviews Erika who shares her family’s seven-year journey to find a diagnosis for her son (English).

 


Rare diseases: Genetic analysis can provide new diagnoses for more people
Swedish Radio report streamed on radio channel P1 on Celeste with SAS

Sällsynta sjukdomar Genanalys kan ge nya diagnoser åt fler