SAS may be rare, but it doesn't mean you need to face this journey on your own.
We are an international family, and we have many helpful members and local communities ready to support you where you are! Reach out to our national SAS ambassadors below to connect with other SAS families living in your area and to share experiences of daily life in your own language.
Click directly on the map or just browse the list beneath it.
ambassadors
Austria
Contact person: Sandra Maksys
Mother language: German
Speaks also: English
Contact:
Belgium
Contact person: Kristel Meessens
Mother language: Dutch
Reach out to Stichting SATB2-Syndroom Nederland-België
Contact:
Bosnia & Herzegovina
Contact person: Smilja Blagojević
Mother language: Bosnian
Contact:
Croatia
Contact person: Antonija Bobanović
Mother language: Croatian
Speaks also: English
Contact:
Czech Republic
Contact person: Bedrich Musil
Mother language: Czech
Speaks also: English
Contact:
Denmark
Contact person: Jonas Fritsch
Mother language: Danish
Speaks also: English, German, French
Contact:
England
See under UK
Estonia
Contact person: Raul Must
Mother language: Estonian
Speaks also: English
Contact:
Finland
Contact person: Irena Pirhonen
Mother language: Finnish
Speaks also: English
Contact:
France
Contact person: Marie Helene Gobin
Mother language: French
Speaks also: English
Reach out to Association Française du SATB2
Contact:
Germany
Contact person: Wiebke Sünderhauf
Mother language: German
Speaks also: English
Contact:
Greece
Contact person: Roubini Vrioni
Mother language: Greek
Speaks also: English
Contact:
Hungary
Contact person: Krisztina Falkay
Mother language: Hungarian
Speaks also: English
Contact:
Iceland
Contact person: Borghildur Birgisdóttir
Mother language: Icelandic
Speaks also: Danish, Norwegian, English
Contact:
Italy
Contact person: Francesco Maule
Mother language: Italian
Speaks also: English
Reach out to Associazione SATB2 Italia
Contact:
Ireland
See under UK
Luxembourg
Malta
Contact person: Sharleen Carbonaro
Mother language: Maltese
Speaks also: Italian, English
Contact:
The Netherlands (Holland)
Contact person: Ivana Agatonovic
Mother language: Dutch
Speaks also: English, Serbian
Reach out to Stichting SATB2-Syndroom Nederland-België
Contact:
Norway
Contact person : Karoline Grimsø
Mother language : Norwegian
Speaks also: English
Contact:
Poland
Contact persons: Paulina Żamejć & Malgorzata Sowa
Mother Language: Polish
Speaks also: German, English
Reach out to SATB2 Polska
Contact:
Portugal
Contact person: Maria João Figueiredo & Luis Fatela
Mother language: Portuguese
Speaks also: English
Contact:
Romania
Contact person: Roxana Berenjiuc
Mother language: Romanian
Speaks also: English
Contact:
Serbia
Contact person: Jelena Egelja
Mother language: Serbian
Speaks also: English
Contact:
Slovakia
Contact person: Tatiana Janoskova
Mother language: Slovak
Speaks also: Czech
Contact:
Slovenia
Contact person: Erika Stariha
Mother language: Slovene
Speaks also: English
Contact:
Spain
Contact person: Maria Gurrea López
Mother language: Spanish
Reach out to Asociación Satb2 España
Contact:
Sweden
Parent: Emmelie Marcus
Mother language: Swedish
Speaks also: English
Contact:
Switzerland
Contact person: Mary Candela
Mother language: German
Speaks also: English, Italian
Contact:
Turkey
Contact person: Ali İhsan Gürhan
Mother language: Turkish
Speaks also: English
Contact:
Ukraine
Contact person: Люда Бородавка
Mother language: Ukrainian
Contact:
United Kingdom
Contact person: Maria Walters
Mother language: English
Reach out to The SATB2 Gene Trust UK
Contact:
Couldn't find your country in the list? Reach out to