Partners & sponsors

Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.

The Global Advocacy Alliance is a global community of non-profit organizations and support groups who are committed to changing the way the world tackles rare diseases. Together, more than 700 organizations from around the world are working to build awareness for rare disease, create community & support networks, create community & support networks, build awareness for rare disease/their disease, work toward treatment/ cure, involved in research, and meet specific needs of people with rare diseases through direct patient assistance programs.

European Reference Network for Rare Malformation Syndromes, Intellectual and Other Neurodevelopmental Disorders